Tyler had a rough night last night having a ventilator in and working really hard. They had to give him lots of pain meds but he looks better this morning than 10:30 last night. He was very pale and anemic last night, so they opted to give him a blood transfusion. The goal today is to get him weaned from the vent today. The doctor took some aggressive steps already this morning and he appears to be doing great with the vent turned into a positive air pressure mode. (Tyler initiates the breath and the vent finishes. Burns less calories that are so precious at this point.) Once the vent is out they will work at getting the PICC line out which has a high risk of clotting the area again.
The doctor feels that after the procedure yesterday the fluid around his lungs has gone down greatly but is still higher than normal. They have been treating him with additional diuretics and it appears that the fluid is moving now that the SVC has been opened up. (I will post a picture of a diagram later today) With this news the doctors feel that they don't need to put in the drain tubes that they had originally thought they would need. (great news but not out of the woods yet) It looks like we will be in the Pedes ICU (PICU) for a little bit but hope to be back in the heart center soon.
Three doctors were checking his echocardiogram in the room while Tyler decided he was done with his ventilator and extubated himself! Little stinker pulled the tube right out. He will have a soar throat for a while since he did that. Thankfully, the doctors were here and were able to help. He is now on his nasal cannula of Oxygen. The echo shows that there is blood flow through the SVC and that is great.
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