Building muscles in the bumbo seat. He's watching Connor jam

Connor loves to jam with his guitar on his stage.

Connor LOVES bbq buffalo wings!

 

We aren't too great at updating the blog these days since things are pretty busy with Tyler. The last xray showed no effusion under the lungs so that is great news! He still has damp lungs, but hopefully we can get rid of that with his medicines over time. He is still being fed with the NG tube over the feeding pump. This is frustrating because he hasn't made much progress with the bottle at all. We will be starting theorapy for building muscles before the end of the month. He does not have much neck or core strenght since he was in the hospital and on ventilators so much. We are working on it and hopefully the stronger muscles will help with feedings.