Home for a Week

What a week we had! Life is crazy when you are learning new things, going back to work and getting your two-year-old back into the routine. The days are full of doctor's appointments, medicines, play time. pumping and food. Friday was going to be my first full day at home alone while John was working but life had other plans. I went into Connor's room to wake him up for the day and discovered he had vomited all over and was running a fever. This was just 15 minutes before the refrigerator repair man was going to be visiting. I put Tyler in his crib and got the tub running before I called my friend whose daughters were coming over to entertain Connor to ask them not to come. I was quite overwhelmed and my wise friend told me to keep doing what needed to be done. John had to come home and help out because it was just too much to keep both boys in separate rooms and handle all of their care on top of the repair guy, the first steps lady (for Tyler's feedings) and the home health nurse who came to do an hour of paperwork that morning! What a crazy morning. Even with both of us, it was stressful being only the third day back from Riley. Tyler had a blood draw appointment that afternoon, so John took him to that. When they were on their way back from the lab in south bend (because the Granger lab was unable to get a good stick yesterday) his doctor called to tell me that the blood work did not look good and that it needed to be repeated at a different lab in South Bend that could get a better stick. John had to turn around and go to this other lab. Poor Tyler was pricked many times that day and they were unable to get a good stick and just did two heel sticks that yielded bad results. This put us in the hospital for the night. On Saturday they were able to get a good stick with the NICU nurses. His levels were good enough to go home and we were scheduled for another xray and blood draws early in the week.

Connor is adjusting fairly well to our new situation. He loves baby Tyler and likes to play with his baby toys and look at him. He is quite helpful which can be difficult when we are trying to give meds or get the tube feeds going. It has been a huge help to have ladies from our church come in each morning for an hour while I do his main round of meds. Connor enjoys the undivided attention and playtime with them. We are also so thankful for all the meals that friends and church members we don't know have blessed us with. We have really appreciated all the help.

Tyler is a great sleeper. He sleeps so well that we have to wake him up to feed him every three hours. Too bad the doctor says that won't be stopping anytime soon. He likes laying on his play mat and looking at stuffed animals.

Our blood work on Monday looked pretty good but the xray on Wednesday showed more fluid on the lungs. Our pediatrician wouldn't let me leave his office until after he talked with Tyler's cardiologist to figure out what to do. The fluid was bad enough that both doctors decided we needed to head back to Riley hospital in Indianapolis on Wednesday. Not what we like to hear, but I am glad his cardiology team will be looking at him since he seems to be struggling to breathe and eat lately.